SPECIAL EVENT

SPECIAL EVENT:  September 29 – October 1, 2017

WHERE:  Double Tree Suites, 2111 Butterfield Rd., Downers Grove, Illinois, 60515

TIME:  Friday 12pm – Sunday 5pm

 

The Time of Your Life

 

This is more than another great Scrapbooking Event, a majority of the proceeds will go towards The Oliva Rose Fund. Your tuition will be helping a 8 year old with Spina Bifita be able to continue with her needed surgeries, medical supplies and medications.

Olivia, my precious Granddaughter, was born with Myelomeningocele, a very serious type of Spina Bifida.  Blue Cross Blue Shield dropped Olivia from coverage the day after her first spine closure surgery at only two weeks old. Since then, it’s has been an uphill battle financially. She was denied “Affordable Healthcare” insurance. Olivia was finally approved for state funded Medicaid. The Illinois state funded program is a horror story of it’s own! Needless to say, very little has been paid by the state.

Olivia has undergone 11 major surgeries including, Spinal Closure, Multiple Tendon Releases of her ankle tendons, Multiple Tendon Releases of her Groin tendons, Tibia Torsion surgery, Removal of her Heel Bone, Both Bladder & Neck Reconstruction, Mace Surgery, Mitrofanoff, Bladder Surgery to inject Botox into the Bladder, Bladder Augmentation Surgery and 3 Tendon Lengthening Surgeries.

Olivia will need tethered cord surgery throughout her life. She will also need orthopedic surgeries as she grows, urology procedures, tendon releases and lengthening and steroid injections for rheumatoid arthritis, for the rest of her life as well.

Olivia is a very happy, caring and comical little girl. She is now in 3rd grade and getting used to maneuvering around the school with either a walker or wheelchair.

We will be updating Olivia’s GoFundMe.com page soon. It has not been updated in awhile. Everyone has been so busy lately. I will post a link soon in case anyone is interested.

I’m sure Olivia will want to visit everyone at the event! She is the family’s socialite!

Speaking of the event, we will holding a raffle for a Silhouette 3 and over $500.00 in other great prizes, Echo Park table favors for everyone and a silent auction.

Laura Bartos will be holding a series of classes throughout the weekend.  A little FYI….she does amazing shadowboxes! These classes will be an extra cost. You will have a chance to register for them soon. We will post notice on our Facebook page and will be able to order on our event order page.

The hotel will be offering special guest room rates. We will have that posted soon as well (waiting for hotel code).

We will do our best to run power to every table. We will not have our usual tools and equipment available for use at this event. Please bring the tools and equipment you plan on using.

A Saturday lunch will be available for only $14 per person. This includes ALL YOU CAN EAT Sandwiches, Salads & Soup.

More information will be coming as we continue to plan the event.

 

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